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Post-Surgery Update {Day 12}

First off, Apollo has thrown up only one feeding since he was released from the hospital. That’s great news. Unfortunately, I’m having to stretch his feedings out to last an hour or more. Prior to the surgery we could feed him in about fifteen minutes. I’m back to spending five hours or so a day just tube feeding him. It’s okay for me, I have nothing else to do while I’m here. The problem is keeping a two-year old still for that long. Not an easy  task. He hates being tube fed and I’m not sure why. I don’t know if it’s painful or if it’s a matter of him not tolerating the new formula. Then, the longer a feeding lasts, the less time he has between feeding to be free. We may have to go back to using a pump for a while.

As far as recovery, the pain comes and goes. It will be something we’re dealing with for months to come (I remember clearly from last time). This morning has been rough. He spent a long time in bed crying that his chest hurt. Being a toddler though, as soon as he starts to feel better he over does it, causing more pain.

I wish so badly I could just sit him down with a big plate of food and see what happens (now that his esophagus is, in theory, fixed). With his fat-free diet, however, I have to make sure he gets enough calories in. Not an easy thing to do with a kid who has a history of not being able to gain weight or grow. His cardiologist here in Texas is adamant that without enough calories and protein his body won’t heal well. We won’t really know how well he can eat until his dietary restrictions are removed (hopefully after six weeks). Since he is now consuming a milk-based formula, we plan to let him eat dairy once he can go back to a normal diet. I am very hopeful that he will be able to tolerate it now (Adalia and Judah both had and outgrew a dairy intolerance).

As far as Apollo, when he’s feeling good, he’s his normal funny self. He knows he is on a fat-free diet and will ask, “Does this food have fat-free in it?” before he eats it.

It is so hard with him recovering from a major surgery that isn’t visible when he’s dressed. He can’t be picked up under the arms (standard procedure after thoracic surgery) but that’s exactly where people want to lift him. And the fat-free diet is a serious issue, yet people continue to hand him food here (two cookies by two different people in one night). I feel like he needs a T-shirt that says, Do Not Lift or Feed the Boy.

The good news? I’ve filled one whole memory card with photos and have a good start on filling a second.  The bad news? It’s going to take me forever to process them and  you are going to be bombarded with Apollo (and Tilly) photos.

Signing off now, the Boy is in need of him mom.

11 Comments

  1. Nicole

    That’s a great T-shirt idea. A baseball cap that says recovering from heart surgery might be a nice touch as well. How long do you have to stay there?

  2. Emily from NZ

    Poor old Apollo! Is he having any of the same anxiety issues as last time? Praying for you guys.
    When my brothers were younger, mum used to buy ‘hello my name is…’ stickers and write ‘do not feed!’ and ‘if lost, please call …’ on them. It was cheap and easy. And kind of novel. One brother was allergic to peanuts (and a whole bunch of other stuff) and the other just has the incredible skill of getting lost.

  3. Michele P

    Praying your needs are met, for some relief for you and for complete healing for Apollo! You all have been through so much, but I trust The Lord will continue to sustain you. May the appointment on the 14 th go well, so you can go HOME! I am sure things will look a 100% better from your own place!

  4. Kathy Barber

    Seriously, a T-shirt might not be a bad idea. With invisible special needs and a cute kid; people just naturally want to cuddle and gift him with goodies.

  5. LoriSfargo

    Is your son doing any better? How long before you can go home? May God continue grace and mercy to you and your family.

    LorettaS
    Hebrews 10:24

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