The blog has been quiet for a few days. Nothing big is happening, just a whole lot of little things that are keeping me busy. Among those is dealing with doctors, nurses and the mounds paperwork that surround having a child with medical issues.
I have been working on getting Apollo seen by his cardiologist (a more difficult task than you might think) and trying to find a pediatrician with enough experience to be helpful (also not an easy task). Apollo’s heart defect is “mild” in comparison to many other children, but it is also rare, meaning it is difficult to find a doctor who has ever even seen a patient with a double aortic arch. His own doctor has never seen one and his cardiologist “once followed a patient” with a double aortic arch, but Apollo is his first patient to have one.
Apollo’s new symptoms of: stalled weight gain, fatigue and heart murmur have us concerned. The new murmur is likely innocent, but I want to know it’s fine, not presume. He is up to three cans of formula a day (that is 720 mls) and is feeling more energetic. I am taking that as a good sign. He is seeing our local nutritionist and dietician next week. I am hoping she can help with the weight gain. And no matter what comes of the murmur, I want to know why Apollo needs so many calories through his tube. No one has been able to answer that question yet. Mordecai and Avi just finished summer school. Summer school, you ask? They went for a total of 18 days (4 half days a week). Both Mordecai and Avi have academic delays and we didn’t think it was a good idea to go the entire summer without working on their skills. They are now free until school starts up again September third.
Judah is back in Florida (we haven’t heard from him, I just know from his schedule). We will be picking him up July 31. I am excited to see him and hear about all of his adventures. Please continue to keep him in your prayers. The adjustment back home can be difficult.