Seven years ago Chuck and I handed our curly-haired two-year-old over to a cardiothoracic surgeon we had just met days previously, entrusting him with our…
G-Tube Graduation Photo Shoot We are quickly coming up on the one year anniversary of Apollo’s g-tube graduation. The anniversary of the day he had…
Five Year Anniversary {Double Aortic Arch Repair} Five years ago today, Apollo had his double aortic arch repair repaired (yes, you read that right) at…
I am angry. I am angry at my son’s doctors, and I won’t apologize for that. I have posted this image of Apollo’s compressed esophagus…
I received Milton the Mealtime Companion in exchange for a review. I received no other compensation for this post. Post contains affiliate links. My six-year-old son,…
Apollo had his check up with his pulmonologist at Seattle Children’s Hospital yesterday. Dr R is our favorite doctor at Children’s. He has been the…
Three years ago today, on Hezekiah’s 8th birthday, Apollo had his feeding tube placed in his stomach. This came not even two months after his…
Yesterday I had an absolutely lovely afternoon with Apollo. Enoch was working, so it was just the two of us all day long. I have…
Learning to Eat with a g-tube Once upon a time there was a boy who struggled to eat. He was hungry and tired but couldn’t quite…
Two years ago today, at 7:10 am we handed Apollo over to the surgical team at Texas Children’s Hospital. The journey that led us to…