The blog has been quiet for a few days. Nothing big is happening, just a whole lot of little things that are keeping me busy. Among those is dealing with doctors, nurses and the mounds paperwork that surround having a child with medical issues. I have been working on getting Apollo seen by his cardiologist…
I love this photo Apollo…It reminds me of a poster from a 50’s horror flick or something. Apollo had his three-year checkup the other day. Overall, Apollo is healthy, but his growth seems to have stalled again. He is 28 pounds even. Not a bad size, really (Judah was only 32 pounds at age five!)…
Apollo has never slept through the night. Well, he has, a time or two, slept for five or six hours…but he’s never Slept-Throught-The-Night. He began taking Melatonin at the recommendation of a sleep specialist back in March 2012, after his first heart surgery. Back in December I wrote about Apollo having nightmares several nights a week. These…
One year ago today Apollo had his g-tube placed at Seattle Children’s Hospital. After a whirlwind five days of testing we had just received the shocking new that Apollo still had a “vascular structure” compressing his esophagus. We were told the only surgery to fix it was far too risky and likely wouldn’t even work…
Last week Chuck and I headed to REI with our dividend check and bought Apollo a new swimsuit. This is one of the many hidden complications of having a g-tube…regular old swim trunks just don’t cut it. We can’t risk that his g-tube gets caught on something while we’re at the park, the beach…
One year ago today Chuck and I handed our 20 month old son over to the surgeon we had just met the day before. Apollo was having his first double aortic arch division. We had no idea what to expect. We paced the waiting room of Seattle Children’s Hospital, knowing Apollo and our entire family…
Apollo is sick. He began vomiting last night and now has a fever. I’m obviously spending my time focusing on him and praying this doesn’t turn into anything respiratory. He has a damaged airway so anything respiratory puts him at risk. So far, no coughing, running nose, etc.
After our rendezvous at California Pizza Kitchen last week, I had the brilliant idea to take the kids to Krispie Kreme doughnuts where they could watch the doughnuts being fried and glazed on their nifty assembly line. Most of the kids had never been there before. Okay, truth be told, most had never even heard…
I know what you’re thinking. You’re a newborn photographer, of course you are going to say newborn photography is “important”. While that’s true, I want to tell you, as a mom, why newborn photography is so very important to me. My last baby, Apollo, was born by emergency c-section. He had a bit a rough…
Yesterday our family attended our very first Starlight Children’s Foundation event. The Starlight Children’s Foundation provides education, entertainment and activities to seriously ill children and their families. The Starlight Children’s Foundation recognizes the strain of a sick child on the entire family and works to bring a little joy and relaxation to everyone. Apollo was approved for…