Two years ago today, at 7:10 am we handed Apollo over to the surgical team at Texas Children’s Hospital. The journey that led us to…
Apollo just received a new shipment of Beads of Courage and I was eager to take him out and photograph him with them before it…
I can’t tell you how many times, as the mother of a child with complex health needs, I have uttered those words to myself. I…
These days it literally takes this two-sleep-pillow-set-up to keep Apollo’s airway open and him breathing while we drive. Apollo saw his ENT earlier this last Tuesday.…
Sleep Eat Breathe Repeat. That’s the life of a baby, right? Unfortunately, those three things have been a struggle for Apollo since he was born.…
Jason and Apollo…best mates. In February we attempted to tube wean Apollo and that attempt failed. Next we attempted to simply lower the amount of formula and…
Two years ago today, Apollo had his first double aortic arch division at Seattle Children’s Hospital. We were so naive and full of hope. He…
One year ago today, after traveling thousands of miles to another state, we handed Apollo over to a new cardiothoracic surgeon. A surgeon who told…
Sometimes we all need a bit of humor in our lives, don’t you agree? So this morning I present to you: Nine Signs that Your…
That phrase has been echoing through my head since Apollo’s visit to his cardiologist nearly two weeks ago. They are the words spoken by his…