The other day as we headed out of the house to run some errands, I suddenly remembered I had forgotten my phone. I asked Judah…
While scouring the internet on my ipad one night in the hospital with Apollo, I stumbled on the Beads of Courage website. I have no…
Where to begin…let me just say if I would have known six months ago, as I watched Apollo writhe in pain after his double aortic…
Preparing for PEG to Mic-Key Surgery Well, I must say, this procedure was a breeze compared to what I was expecting. Apollo is always full…
{The following photos were taken on my iPhone} Apollo’s support team for yesterday’s marathon of appointments. Don’t mind their expressions, they were happy to be…
Sweet Apollo, painting with watercolors for the first time. In bed this morning, Apollo wedged between us, I said to Chuck, “It’s been six months…
Apollo is such a little talker! He’s been cracking us up lately with his thoughts. The first words out of his mouth this morning, as…
Killing time at the Starbucks on the fifth floor of Seattle Children’s Hospital. Don’t let the juice box fool you- he didn’t actually drink any…
Insurance companies. I am grateful for ours. Really. We maxed out our out-of-pocket expenses in one fell swoop, with Apollo’s MRI back in January (has…
Another day, another visit to Children’s. Life with a sick child is exhausting, plain and simple. There is always something. Four tube feeds a day,…