Seven years ago Chuck and I handed our curly-haired two-year-old over to a cardiothoracic surgeon we had just met days previously, entrusting him with our son’s life. We had flown all the way from Washington to Texas with one-way tickets. When we left Washington we had no idea what was going to happen. We knew…
G-Tube Graduation Photo Shoot We are quickly coming up on the one year anniversary of Apollo’s g-tube graduation. The anniversary of the day he had his g-tube surgically removed. When Apollo had his g-tube placed in May of 2012 we were told me might always need it. We were told there was no way to…
Five Year Anniversary {Double Aortic Arch Repair} Five years ago today, Apollo had his double aortic arch repair repaired (yes, you read that right) at Texas Children’s Hospital. The week before Chuck and I left ten children behind in Washington and boarded a plane (along with Tilly and Apollo) with one-way tickets to Houston, Texas….
Ultimate G-Tube Resource Guide for Parents of Medically Complex Kids My son, Apollo, had a g-tube placed when he was 22 months old. Thankfully we had good friends whose son had a g-tube for nearly three years. They were our main g-tube resource and I was thankful to have them to consult when we had…
I was sent The Picky Eater Project for review purposes. All opinions are my own. Post contains affiliate links. The Picky-Eater Project Review Raising a Struggling Eater if you read my recent review about Milton the Mealtime Companion then you will know we have had more than our fair share of picky eating to deal…
Do Bedwetting Alarms Work? Our family, unfortunately, has vast experience with bedwetting. When our oldest was eight and still wetting the bed every single night, we decided it was time to take action. Not only did our oldest we the bed, but all of her younger siblings did as well. And our kids didn’t just…
To say it has been a rough twelve days since Apollo’s g-tube removal would be a massive understatement. I am happy to say he is now fever and pain-free and healing well. We had an amazing visit to Children’s on Friday. We now get to move onto a much less invasive packing of the wound…
Staph Infection After Surgery: What You Need to Know When Apollo was in the emergency room and they opened his surgical incision they took a sample from the infected area. They confirmed that he has a staph infection at the surgical site. It has been a long, slow recovery for Apollo. I am happy to…
Infection After G-Tube Closure Part 2 This is part two. You can read the first post Infection After G-Tube Closure here. — Sedation Using Ketamine Options were discussed for sedation. I told the doctors that after safety, my next priority as comfort. Whatever they did, they needed to make him comfortable. They decided on Ketamine….
Infection After G-Tube Closure This weekend ended up being a complete nightmare because Apollo developed an infection at his surgical site. Was I surprised? No. Was Chuck surprised? No. Were you, friends, surprised? Of course not. It would stand to reason that a person with that much pain after a minor procedure and a persistent…