Five Year Anniversary {Double Aortic Arch Repair} Five years ago today, Apollo had his double aortic arch repair repaired (yes, you read that right) at…
Beads of Courage Seattle Bead Challenge A few weeks ago Chuck and I packed up the troops and headed to Seattle to attend the Beads…
Last week was Kalina’s yearly hearing test. Kalina was diagnosed with unilateral hearing loss in 2013…when she was twelve years old. I will forever regret…
Summer has arrived. My favorite season of the year! I love long, lazy days in the sun. Swimming, hiking, reading. Eating ice cream. Summers, unfortunately,…
The thing about autism is that even the smallest change in routine can throw a person. So many times over the last 14 years Chuck…
Late Autism Diagnosis {Diagnosed with Autism as a Teen]There has been so much big stuff happening over here lately. Iris announcing her pregnancy to the…
Ultimate G-Tube Resource Guide for Parents of Medically Complex Kids My son, Apollo, had a g-tube placed when he was 22 months old. Thankfully we…
I don’t want my child to be labeled….will a diagnosis help? We Welcomed Our Son With Open Arms When we adopted our son at four weeks…
Staph Infection After Surgery: What You Need to Know When Apollo was in the emergency room and they opened his surgical incision they took a…
Infection After G-Tube Closure Part 2 This is part two. You can read the first post Infection After G-Tube Closure here. — Sedation Using Ketamine…