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SNACS Seattle Children’s Hospital

So there I am, in the drug store fishing around in the bottom of my bag so I don’t have to break a dollar bill over the forty-seven cents in change. I mean, you’d do the same, right? But you might not have not one, not two but three bottles of prescription medicine threatening to spill out of your bag and on to the counter. Prescriptions from a different pharmacy. While you were buying two bottles of cherry-flavored melatonin. Because really, this stuff only happens to me. 

I managed to buy the cherry-flavored melatonin without spilling the beans medicine. But when I  had to return to that very same drug store not fifteen minutes later (because I forgot the pull-ups) I did send Enoch in. He didn’t have a bag overflowing with prescription bottles. 

Sitting on the couch with Apollo yesterday afternoon he informed me was going to take his sausage to heaven. “Oh, how are you going to do that?” 
“I am going to eat it so it goes to heaven with me.”

Well, I did ask. I just hope he isn’t planning on going there any too soon…

And I know you have all been waiting to hear about our last trip down to Children’s for the “autism evaluation”. First off, they clearly are not evaluating him for autism, which is a little frustrating, because that is what he was referred here for. Instead, he is part of the Specialized Neurodevelopmental Assessment and Consultation Service (or SNACS). I wasn’t given this information until a couple of visits in, which is really frustrating. Why wouldn’t they just say, we won’t evaluate him autism, but we will do this instead? I have no idea. 

Here is the description from their own PDF (which I had to find online. I was never given a copy):

It is a short-term consultation service with a  provider who specializes on how prenatal exposures and neurodevelopmental disabilities affect children. Neurodevelopmental Disabilities of the brain, such as fetal alcohol spectrum disorders (FASD) or autism. [sic]

“Your child was referred to SNACS because of concerns that some of their past and current challenges may be related to their exposures to alcohol before they were born…” <—Um, yeah, he has an FASD diagnosis. 

On the bright side, the psychologist spent 3 1/2 hours testing him. He IQ test came back only one point different from the one given in third grade, meaning we can feel sure that the number is more or less accurate. His adaptive skills are very low, which is why he (and we) struggle so much. His biggest area of strength? Spatial reasoning! Huge score for LEGO!

Seattle Children's Hospital SNACS program.

I spent probably 40 minutes with a family services person discussing his issues and the lack of help we are receiving. Among other things, they will be helping me reapply for DDA services (one main we reason we have been seeking this evaluation). 

I go back next month where we have our last (I think) visit and they present me with the results. So far it has been a whole lot of: try this therapy (we don’t have any near us), try this therapy (insurance will only cover it if he has autism) try this (the waiting list is 2 years), try this (already did). At one point when I was referred to a popular therapy center here, I was able to pull out the papers I printed off of the center’s  website stating very clearly, “these services are covered if the diagnosis is autism. For any other diagnosis families must pay out-of-pocket.” That folks, just isn’t going to work. I would gladly spend every dollar I have on therapy for my children, but we have a mortgage to pay and groceries to buy. 

Not to mention Adoption Support is supposed to cover these expenses. 

I am happy that something is being done and they are listening.

I am not so sure it is going to result in actual help for us. 

 

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